tag:blogger.com,1999:blog-7475421169297045376.post2873926948453120268..comments2022-11-20T09:14:13.295-05:00Comments on Breezy's Bravery A Fight Against Cystic Fibrosis: How do you answer ?Jessiehttp://www.blogger.com/profile/09717443369354640997noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7475421169297045376.post-12747419815771450182009-02-01T08:23:00.000-05:002009-02-01T08:23:00.000-05:00We will pray for you all! I am so sorry you and yo...We will pray for you all! I am so sorry you and your famiy to have to go through such a horrible thing.It doesn't seem fair? It really makes me reflect on Sweating the "small stuff" like common curable childhood illnesses that I deal with every now again and makes me feel lucky that I don't have to deal with this.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-22577468552656813552009-01-14T11:26:00.000-05:002009-01-14T11:26:00.000-05:00There's a really good book, Little Brave Ones:...There's a really good book, Little Brave Ones: For Children Who Battle Cystic Fibrosis. http://www.amazon.com/Little-Brave-Ones-Children-Fibrosis/dp/1419617052/ref=sr_1_1?ie=UTF8&s=books&qid=1231949982&sr=1-1<BR/><BR/>It's written from a little girl's point of view who has CF. It has lots of pictures of her daily activities as well as other kids with CF across the country doing their treatments but also being regular kids. Seamus loves it and we talk about how lots of kids are like him and wear the vest, take enzymes, have feeding tubes etc. <BR/><BR/>He also really likes to look at the blogs and see Breezy, Samantha, Reilly, Phoenix and other kids with CF.Juliehttps://www.blogger.com/profile/14213549314707396509noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-60890479493855342762009-01-12T12:34:00.000-05:002009-01-12T12:34:00.000-05:00Along with Christy, my parents were always honest ...Along with Christy, my parents were always honest with me, in an age appopriate way of course. I started doing treatments shortly after birth, and I remember fighting it and asking why constantly! I'm sorry Breezy has to go through this. I also remember seeming much older than I was...CF is a lot to deal with as a kid.Heidihttps://www.blogger.com/profile/07791278701579085418noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-68449993201714886642009-01-08T20:16:00.000-05:002009-01-08T20:16:00.000-05:00My parents were always honest with me about my CF,...My parents were always honest with me about my CF, my treatment, everything the docs told them.<BR/>I am so grateful to them for that!!<BR/>God bless all of you parents of CFers.Christyhttps://www.blogger.com/profile/07257412116217529657noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-38025593499726499472009-01-06T23:46:00.000-05:002009-01-06T23:46:00.000-05:00I have had to deal with these kinds of questions f...I have had to deal with these kinds of questions from my son. He turned 5 years old in December and has been doing treatments his entire life. But he has 3 older siblings that do not have cf so he sees there is a difference. He just asked me the other day while doing his treatment why he was the only one who has to do them...he also asked me if he could stop them when he is 10 years old (I guess because his youngest brother is 10). It really caught me off gaurd....I just told him he had to do his treatments to keep his lungs healthy. I just dread the bigger questions that I know are coming...but like I always say...one day at a time!<BR/>CarrieCarriehttps://www.blogger.com/profile/12549243807808084605noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-87047860459254332142009-01-06T11:03:00.000-05:002009-01-06T11:03:00.000-05:00Bless her, Bless her, blessss her!Soon, she'll be ...Bless her, Bless her, blessss her!<BR/><BR/>Soon, she'll be singing opera for fun while wearing he vest, I do.<BR/><BR/>Sigh, I wish her a miracle, honestly, I hope and pray by the time she's nine, she will have a breakthrough.Genevievehttps://www.blogger.com/profile/03224168980608089968noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-85434189745201300692009-01-06T09:10:00.000-05:002009-01-06T09:10:00.000-05:00Poor baby girl! I hope things get better!I'll pray...Poor baby girl! I hope things get better!<BR/><BR/>I'll pray extra hard tonight!Brihttps://www.blogger.com/profile/06470670581764841878noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-82020236089226321732009-01-06T08:21:00.000-05:002009-01-06T08:21:00.000-05:00Reilly hasn't asked any questions, but she has...Reilly hasn't asked any questions, but she has been doing treatments since 19 months. I think that makes such a big difference. Someone suggested I get the book "Mallory's 65 Roses", which explains the disease & treatments in a kids perspective. I did get it, and it's pretty good. Maybe that would help Breezy along? CF is tough, and it's just not fair that we have to put our kiddos through this, but when they are old(er), they will hopefully be thankful! :o) Good luck!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-71050062811394364932009-01-06T02:15:00.000-05:002009-01-06T02:15:00.000-05:00Wow, that's real life for sure! We haven't gotten...Wow, that's real life for sure! We haven't gotten there yet, but because I know it's not far off I'm very interested in the responses you get. I'll be checking back!Aliciahttps://www.blogger.com/profile/14286911362296016524noreply@blogger.com