tag:blogger.com,1999:blog-7475421169297045376.post841908239830185891..comments2022-11-20T09:14:13.295-05:00Comments on Breezy's Bravery A Fight Against Cystic Fibrosis: CF ClinicJessiehttp://www.blogger.com/profile/09717443369354640997noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7475421169297045376.post-13951803764917530022009-02-23T01:27:00.000-05:002009-02-23T01:27:00.000-05:00Jesse,You and Nate are doing an incredible job tak...Jesse,<BR/>You and Nate are doing an incredible job taking care of Breezy! We love you very much. Hugs, kisses, and prayers are being sent from Aunt Ginger and all of your friends and family in South Carolina!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-53680246703107692712009-01-27T17:53:00.000-05:002009-01-27T17:53:00.000-05:00I agree with what you said about CF. It's like yo...I agree with what you said about CF. It's like you can't pin it down! Samantha has had such a hard time with GI issues, so I understand that constant need to up the dosage! Hope you've already seen a positive affect.Aliciahttps://www.blogger.com/profile/14286911362296016524noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-66889206909514833112009-01-25T20:50:00.000-05:002009-01-25T20:50:00.000-05:00Jessie,Hi! No, Zoe is not on either presently. She...Jessie,<BR/>Hi! No, Zoe is not on either presently. She goes on Tobi as needed (when cultures show she needs it...) as far as a maintenance Zithro...never. I was wondering about why Breezy was on a maintenance antibiotic, considering she was just diagnosed in Sept...I thought that was interesting. Do you guys see Lang every time?? Also...just curious...who is the blonde lady in a lot of your pics...at first I didn't know who was Breezy's mom...:)<BR/>Take care, love,<BR/>JadaZoe Isabellahttps://www.blogger.com/profile/09400210769769511354noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-25157798335359618532009-01-25T20:28:00.000-05:002009-01-25T20:28:00.000-05:00It seems we are battling the geasy stools alot too...It seems we are battling the geasy stools alot too. One day it looks good the next maybe not. He has always been that way but seems to gain weight ok. He could stand to gain more but as long as he is gaining some I try not to panic!!Carriehttps://www.blogger.com/profile/12549243807808084605noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-34613149770715747132009-01-25T16:06:00.000-05:002009-01-25T16:06:00.000-05:00Yeah, seems like we are all battling the weight th...Yeah, seems like we are all battling the weight thing right now. You are right, with cf, just when you think you have a handle on it, things look good, then, SLAP!! Doesn't seem fair. Did Breezy culture some bacterias before...just curious...because of the Tobi and Zithro. When will she be 5? Zoe will be 5 in April.<BR/>I pray everything goes good for you with her cultures! Hugs to you guys....JadaZoe Isabellahttps://www.blogger.com/profile/09400210769769511354noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-64154536293191475422009-01-24T16:49:00.000-05:002009-01-24T16:49:00.000-05:00You don't always get what you expect, that is for ...You don't always get what you expect, that is for sure. Sorry that Breezy's BMI went down. It is really disheartening, especially when you are not expecting it. Hope the Creon 10 help. I am assuming she was on 5 before?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-75083375296407853902009-01-24T15:34:00.000-05:002009-01-24T15:34:00.000-05:00Thats a lot on your plate Mama! Hang in there!Thats a lot on your plate Mama! Hang in there!Brihttps://www.blogger.com/profile/06470670581764841878noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-56707256319485441222009-01-24T14:00:00.000-05:002009-01-24T14:00:00.000-05:00Hope the increase in creon does the trick!Glad to ...Hope the increase in creon does the trick!<BR/>Glad to hear the lungs sound great, tell her to keep up the good work on the vest!<BR/>Hope you have a great weekend!<BR/>AngelaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-71943868678147853262009-01-24T13:30:00.000-05:002009-01-24T13:30:00.000-05:00hey, thanks for the nice comment. We got to try ou...hey, thanks for the nice comment. We got to try out the vest in class. Apparently it's a life saver for kids with CF. It's great that Breezy is using it.Marcushttps://www.blogger.com/profile/17051315342637045742noreply@blogger.com