tag:blogger.com,1999:blog-7475421169297045376.comments2022-11-20T09:14:13.295-05:00Breezy's Bravery A Fight Against Cystic FibrosisJessiehttp://www.blogger.com/profile/09717443369354640997noreply@blogger.comBlogger256125tag:blogger.com,1999:blog-7475421169297045376.post-69793153164773746172010-10-23T13:56:37.301-04:002010-10-23T13:56:37.301-04:00Great video!I really wanted to be there.I wished I...Great video!I really wanted to be there.I wished I could have done more than buying 2 shirts but I am wearing my shirt to the school that I work for and letting them know that I want to be off for the next "Great Strides Walk". Good Job! I love you,BreezyWandahttps://www.blogger.com/profile/07900195069919660142noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-1096224952520266542010-10-23T13:36:52.842-04:002010-10-23T13:36:52.842-04:00I loved the article and picture of Nate and Breezy...I loved the article and picture of Nate and Breezy. Good job everyone!Wandahttps://www.blogger.com/profile/07900195069919660142noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-2862253371031185412010-10-23T13:33:21.832-04:002010-10-23T13:33:21.832-04:00Great article!Great article!Wandahttps://www.blogger.com/profile/07900195069919660142noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-37934667462079276722010-10-05T21:05:59.074-04:002010-10-05T21:05:59.074-04:00I never even knew what was wrong with me I dealed ...I never even knew what was wrong with me I dealed with the stomach pains and very very frequent stools throughout the day its like my stomach rejected everything and growled at me all day, the doc let me try zenpep and its truely improved my living quality I love it my lifes completely dif now, I feel great...I'm glad it works for other people...it must really stink to have this so young it really is a constant never ending battleUnknownhttps://www.blogger.com/profile/01238041371979801023noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-16286239196885511522010-09-22T10:29:33.902-04:002010-09-22T10:29:33.902-04:00I am touch by all that has happen and know that ou...I am touch by all that has happen and know that our good Lord has reasons on many things we have to go through. I will keep you and your family in my prayers and know that there are reasons why we have to climb mountains to get to our goals in life. May God keep you all in his loving arms and may you be blessed. I have been there with my son who was handicapped and he had alot of battles in his life. <br />He died in July 31, 2001 and I know he is God arms right now. I pray for you all and know some day a cure will come. We all will fight for it, I give to our local area and know that it all goes to this cure. <br />Love you all <br />Caroline Morrow McTyeireCaroline Morrowhttps://www.blogger.com/profile/08328828092354078352noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-29065521780611434802010-09-15T21:01:00.520-04:002010-09-15T21:01:00.520-04:00Wow thank you for posting my story!Wow thank you for posting my story!Unknownhttps://www.blogger.com/profile/13337898695537528215noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-82913337004808770912010-09-15T15:50:15.258-04:002010-09-15T15:50:15.258-04:00Bless her how good was she to lie so still! I'...Bless her how good was she to lie so still! I've had a CT scan and they aren't the most pleasant of experiences.<br /><br />Will keep you all in our thoughts.<br />xxxGemmahttps://www.blogger.com/profile/11957950095913776584noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-11105805092729889912010-09-15T09:10:28.377-04:002010-09-15T09:10:28.377-04:00she is so brave!she is so brave!Brihttps://www.blogger.com/profile/06470670581764841878noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-51298736532241752022010-09-02T07:36:47.646-04:002010-09-02T07:36:47.646-04:00All I want for christmas is my two front teeth! So...All I want for christmas is my two front teeth! So cute!Brihttps://www.blogger.com/profile/06470670581764841878noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-49685556787166364332010-08-22T07:44:16.046-04:002010-08-22T07:44:16.046-04:00I also forgot to add, i'm sorry to hear about ...I also forgot to add, i'm sorry to hear about the pneumonia but so so glad she has recovered from it!<br /><br />xxGemmahttps://www.blogger.com/profile/11957950095913776584noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-25755132006771747282010-08-22T07:42:25.712-04:002010-08-22T07:42:25.712-04:00Hi there, I cant believe I didn't message you ...Hi there, I cant believe I didn't message you (my brain is not what it once was :) )but I awarded your blog an award! If you visit my blog 'lungs behaving badly' and scroll down to 'this is a surprise' you can pick it up! Glad you've had a great summer and your daughter is adorable!<br /><br />Take care<br />xxGemmahttps://www.blogger.com/profile/11957950095913776584noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-41352524761419355402010-07-27T12:11:45.184-04:002010-07-27T12:11:45.184-04:00Jessie,
Love it! Great job! Hope all is going wel...Jessie,<br /><br />Love it! Great job! Hope all is going well with Breezy...<br /><br />Take care,<br />JadaZoe Isabellahttps://www.blogger.com/profile/09400210769769511354noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-41713592216006204702010-06-15T10:33:23.508-04:002010-06-15T10:33:23.508-04:00Just started following! I have read a bit and love...Just started following! I have read a bit and love the blog!! I will keep you in our thoughts and prayers!<br /><br />Also, you are welcome to check this site out. Might be a fun idea for you guys!!<br />www.snpenpals.blogspot.comAnonymoushttps://www.blogger.com/profile/08931297334966057218noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-69288818625458099792010-06-06T15:23:52.796-04:002010-06-06T15:23:52.796-04:00So sorry.I hope it clears up soon.I love you,
...So sorry.I hope it clears up soon.I love you, <br /> NannyWandahttps://www.blogger.com/profile/07900195069919660142noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-14044578064162715212010-06-06T15:15:45.720-04:002010-06-06T15:15:45.720-04:00I love the picture,Breezy. You're Growing up s...I love the picture,Breezy. You're Growing up so fast and your hair is getting so long.Very pretty! I love you....NannyWandahttps://www.blogger.com/profile/07900195069919660142noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-79692324624818758432010-06-05T12:48:17.783-04:002010-06-05T12:48:17.783-04:00Jessie,
So sorry to hear about the PA....and the y...Jessie,<br />So sorry to hear about the PA....and the yummy Tobi! :( Tell Breezy we hope her "yucky" neb goes quickly!!<br />Take care,<br />JadaZoe Isabellahttps://www.blogger.com/profile/09400210769769511354noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-3988338624274516842010-06-03T11:42:52.473-04:002010-06-03T11:42:52.473-04:00It means that she has a bacteria in her lungs that...It means that she has a bacteria in her lungs that if untreated could lead to lung infection. So she has to take TOBI which is an inhaled (nebulizer) antibiotic. Hopefully the TOBI will clean it u before it gets worse.Jessiehttps://www.blogger.com/profile/09717443369354640997noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-43319860431767444132010-06-02T21:48:51.700-04:002010-06-02T21:48:51.700-04:00what does that mean? sorry I should google!what does that mean? sorry I should google!Brihttps://www.blogger.com/profile/06470670581764841878noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-18034679286526951142010-05-23T01:11:33.697-04:002010-05-23T01:11:33.697-04:00Hey! Us too! What is the hyper-tonic saline doing?...Hey! Us too! What is the hyper-tonic saline doing? it's pretty much the only difference between our two's meds, except the Creon's still working over here. And we're jelous of your pool.<br /><br />Wishing Breezy squeaky clean cultures and squeak-free breathing!MammaThttps://www.blogger.com/profile/01445676139842956757noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-25492572147782668092010-05-22T23:09:41.890-04:002010-05-22T23:09:41.890-04:00Hey there, I read your blog all the time and love ...Hey there, I read your blog all the time and love it. My husband Nick has Cystic fibrosis too...I wanted to let you know we are doing A fundraiser in Jacksonville for CF called bowling for breath which is A bowling tournament I would love to have you and your family with friends come and be apart of it.. Please e-mail me for details hope all is well AmandaAmanda Fayehttps://www.blogger.com/profile/03984968248300099716noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-22070700082541640202010-05-21T07:33:37.877-04:002010-05-21T07:33:37.877-04:00Sooo cute! You make me envious! :)Sooo cute! You make me envious! :)Brihttps://www.blogger.com/profile/06470670581764841878noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-72492510119569971532010-05-19T15:37:33.268-04:002010-05-19T15:37:33.268-04:00Glad to hear she likes them! We had always had pro...Glad to hear she likes them! We had always had problems with Creon in the past. Azer has been on Pancrecarb for such a long time, I'm really stressed about switching to another enzyme, but I've been hearing good things about the Zenpep, so I hope we get to try it when our prescription runs out!Lydia Russellhttps://www.blogger.com/profile/15185110070411224807noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-66613567227670554942010-05-19T13:21:02.184-04:002010-05-19T13:21:02.184-04:00Lucy started taking Zenpep over a month ago, but w...Lucy started taking Zenpep over a month ago, but we had a rocky start. The insurance we have wouldn't approve the name brand Zenpep at first, and would only approve the generic Zenpep (made by the same pharmaceutical company). Even though we knew that generic enzymes, in most CF cases, don't work effectively, we decided to give it a try anyway since it was such a new product and maybe, just maybe, the generic would work. It went horribly! Lucy, with the generics, had horrible stomach and absorption issues like stomach ache, up to 10 poops a day, and even another rectal prolapse. We had to fight with the insurance company a little bit, but we finally got the name brand Zenpep, and now Lucy is doing GREAT! It has greatly improved her bowel problems as compared to Creon, Pancrecarb. We are so happy with it now that all the kinks have been worked out! :) <br /><br />Lucy has the really tiny Zenpep 5,000. They are white pills and very small making it so easy to swallow. I really hope the Zenpep works out for Breezy in the long term! :)Lucy's momhttps://www.blogger.com/profile/06126095986715998848noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-24515528873526813302010-05-19T13:06:44.614-04:002010-05-19T13:06:44.614-04:00I'm glad she feels better!I'm glad she feels better!Brihttps://www.blogger.com/profile/06470670581764841878noreply@blogger.comtag:blogger.com,1999:blog-7475421169297045376.post-65045824695948614452010-05-19T07:52:10.914-04:002010-05-19T07:52:10.914-04:00Glad too see a post! Go breezy!Glad too see a post! Go breezy!Brihttps://www.blogger.com/profile/06470670581764841878noreply@blogger.com