We have been having the hardest time trying to teach Breezy how to spit up all of the mucus. She generally just swallows it and occasionally it gives her a tummy ache. But eureka yesterday she spit some out. It was great you would have thought this kid just won the lotto with all of the cheering and clapping I did. But I really felt as if it was a milestone in her treatment process.
We are waiting on her tobi delivery form the pharmacy so that she can start back up this month. I'm not sure if your children enjoy tobi but its the only nebulizer that Breezy has a problem with doing. She can't stand that it makes her cough.
The results for her sleep study came back. The doctors say that she does not have a breathing obstruction. So that is a good thing, but they want to do another sleep study in 5-6 months because while she is sleeping her breathing goes so shallow that she pauses breathing.
Her treatments are going well and besides a upper respiratory infection she has been relatively healthy this month. Her father and I are still in the I'm not sure what is CF stage. Like when Breezy got a fever, coughing and shallow breathing this month. I had already taken her to the doctors when her fever jumped so i called Nemours at 10:00 at night. I told the doctors she had a fever and she replied "Did you try Tylenol?" I felt like a dummy. My daughter is a newly diagnosed CF patient and that is scary. For some reason all logic goes out the door when I think she is breathing funny.Hopefully I'll get the hang of when to worry and when to reach for the Tylenol.