Another CF mom Jada at Zoe for Life asked me if Breezy's doctors added any oral antibiotics and I told her no. Well about 3 hours after I responded to Jada Nemours called me and said that Breezy's Doctor decided to take a more aggressive approach against this Pseudomonas. So Breezy is going to be starting on Levaquin an oral antibiotic and also Colistin which is administered by eflow.
Both of these medications are new to us. Have any of you ever used the eflow? I was told that the eflow is like a nebulizer that is administered in about 4 minutes. Breezy is on the Tobi nebulizer and the company that makes the eflow PARI Pharma has been conducting clinical trials with Tobi 100. Tobi 100 would be used in the eflow instead of the normal nebulizer. The eflow takes about 4minutes and the normal nebulizer takes about 16 minutes. Which is absolutely wonderful and i can't wait for Tobi 100 to be available to the public, Tobi kids would be much happier.